No one said that Lupus patients don't contract CCP virus. Rather, what was said was that Lupus patients are not getting sick from CCP virus.
There are a bunch of people calling the data from this Alliance reports bullshit. Do you have any other sources?
You are messing with GWB here man, stating something like that as a fact with no source? Watch the master school you..
Why don't you contact all the founders of the alliance listed below -- many who are viewed as some of the top medical experts in the world -- and tell them that their COVID–19 Global Rheumatology Alliance is bullshit. https://rheum-covid.org/about/ About Establishing The COVID–19 Global Rheumatology Alliance Steering Committee: The steering committee is composed of academic and community rheumatologists and a patient representative. The steering committee was formed with the goal of rapidly curating and disseminating accurate, timely, evidence-based information to the community of rheumatology providers and patients. Please note that we are a very early stage, grassroots organization (established March 12, 2020) that was rapidly formed in response to the global COVID–19 pandemic. Listed below is the initial Steering Committee. Representation based on gender, geographic location, and ethnic diversity is very important to our group, and will be an important focus as we continue to grow and evolve. Current Steering Committee: Philip Robinson, MBChB, PhD, FRACP, MAICD (@philipcrobinson) Chair, Governance, Policy Dr. Philip Robinson is a clinical and academic rheumatologist at the Royal Brisbane Hospital, in Queensland, Australia and associate professor at the Faculty of Medicine at The University of Queensland. Jinoos Yazdany, M.D., MPH (@JYazdanyMD) Vice-Chair, Real-world Data Infrastructure, Registry and IRB/Ethics Dr. Jinoos Yazdany is Chief of the Division of Rheumatology at Zuckerberg San Francisco General Hospital (ZSFG) and the Alice Betts Endowed Professor of Medicine at the University of California, San Francisco (UCSF). She practices rheumatology at ZSFG and co-directs the Lupus Clinic at UCSF Health. Paul Sufka, M.D. (@psufka) Technology and Marketing Lead Dr. Paul Sufka is department chair and practices rheumatology with HealthPartners medical group in St. Paul, MN. He is also the social media editor for Arthritis & Rheumatology, Arthritis Care & Research, and ACR Open Rheumatology. Rebecca Grainger, MBChB (Dstn), BMedSci (Dstn) MIsntD, CHIA, FRACP, FACHI, PhD (@Drbeckyg) Literature Review Co-Lead Dr. Rebecca Grainger is a clinical and academic rheumatologist in New Zealand, working in public hospital practice [Hutt VAlled DHB]. She is an Associate Professor in the Department of Medicine and Department of Pathology and Molecular Medicine at the University of Otago in New Zealand. Zach Wallace, M.D., MSc (@zach_wallace_md) Literature Review Co-Lead Dr. Zachary Wallace is a rheumatologist and researcher in the Rheumatology Unit and Clinical Epidemiology Program at Massachusetts General Hospital. He is an Assistant Professor of Medicine at Harvard Medical School. Suleman Bhana, M.D., FACR (@DrBhana) Organizational Liaison and Media Dr. Suleman Bhana is a clinical Rheumatologist in a multi-specialty group private practice in New York. He is chair of the Communications and Marketing Committee of the American College of Rheumatology, a co-found of the #RheumJC twitter based journal club, and former co-host of The Rheumatology Podcast. Emily Sirotich (@emilysirotich) Patient Engagement Co-Lead Emily Sirotich is a patient partner, board member of the Canadian Arthritis Patient Alliance, and PhD student in Health Research Methodology at McMaster University. Jean Liew, M. D, (@rheum_cat) Administrative Lead Dr. Jean Liew is a rheumatology fellow at the University of Washington in Seattle, WA, where she performs clinical research. Jonathan Hausmann, M.D. (@hausmannMD) Patient Registries Collaboration Lead Jonathan S. Hausmann is a pediatric and adult rheumatologist at Boston Children’s Hospital and Beth Israel Deaconess Medical Center at Harvard Medical School. Pedro Machado, M.D. (@pedrommcmachado) European Lead Dr. Pedro Machado is an Associate Professor & Consultant Rheumatologist at University College London (UCL). He leads a myositis clinic at University College London Hospitals (UCLH) and an axial spondyloarthritis clinic at Northwick Park Hospital. He is the Chair of the EULAR Standing Committee on Epidemiology and Health Services Research (SCEHSR) and a member of the EULAR Executive Committee. Wendy Costello (@wendycostello2) Patient Engagement Co-Lead Wendy Costello is a mum to Niamh who was diagnosed at the age of 3 with Juvenile Idiopathic Arthritis. She is the co-founder and chairperson of the Irish Children’s Arthritis Network (iCAN) in 2013, which is a volunteer charity that supports children and young people living with paediatric rheumatic diseases. She is also the current Chair of the European Network of Children with Arthritis (ENCA), sits on the board of the Paediatric Rheumatology European Society council, and is chair of the steering committee of the University College Dublin Centre of Arthritis Research. Current Regional Leads: Country or Region Name of Lead Institution or Affiliation Australia David Liew Austin Health/University of Melbourne Austria Paul Studenic Medical University of Vienna Brazil Claudia Marques Universidade Federal de Pernambuco/Brazilian Society of Rheumatology Canada Diane LaCaille University of British Columbia Sindhu Johnson University Health Network Keshini Devakandan University Health Network Carter Thorne University of Toronto China Mengtao Li Chinese SLE Treatment and Research Group (CSTAR) Colombia Sebastian Herrera Hospital General de Medellín / ARTMEDICA / Universidad CES France Laure Gossec Sorbonne Université Francis Berenbaum Sorbonne Université, INSERM, AP-HP Germany Anja Strangfeld Deutsches Rheuma-Forschungszentrum Berlin (DRFZ) – Ein Institut der Leibniz-Gemeinschaft Johannes Knitza Universitätsklinikum Erlangen Peter Korsten Universitätsmedizin Göttingen Ireland Richard Conway St. James’s Hospital / Blackrock Clinic Japan Mari Kihara Pharmaceuticals and Medical Devices Agency, Tokyo Medical and Dental University Latvia Bulina Inita Pauls Stradins Clinicak University Hospital Mexico Erick Adrian Zamora Tehozol Centro Médico Pensiones Peru Manuel Ugarte-Gil Universidad Científica del Sur-Hospital Guillermo Almenara Irigoyen Philippines Anna Kristina Gutierrez Makati Medical Center/ Philippine Rheumatology Association Geraldine Zamora University of the Philippines-Philippine General Hospital/ St. Luke’s Medical Center Portugal Elsa Mateus Portuguese League Against Rheumatic Diseases Spain Loreto Carmona Instituto de Salud Musculoesquelética Saudi Arabia Ibrahim Almaghlouth King Saud University South Africa Kate Webb University of Cape Town Kavita Makan University of Witwatersrand Turkey Vedat Hamuryudan Istanbul University-Cerrahpasa, Cerrahpasa Medical School UK Taryn Youngstein Imperial College London Pedro Machado University College London Richard Beesley Juvenile Arthritis Research & ENCA Kimme Hyrich University of Manchester Bethan Goulden University College Hospital London Chris Wincup University College Hospital London Coziana Ciurtin University College Hospital London Jessica Manson University College Hospital London Su-Ann Yeoh University College Hospital London USA Adam Kilian George Washington University Maria Danila University of Alabama at Birmingham Isabelle Amigues National Jewish Health Eugenia Chock Yale School of Medicine Michael Putman Northwestern University Laura Lewandowski National Institutes of Health Jon Hausmann Boston Children’s /Beth Israel Deaconess Medical Center/ Harvard Medical School Maximilian Konig Johns Hopkins University Beth Wallace University of Michigan Andrew Vreede University of Michigan/Ann Arbor VA Reema Syed Washington University School of Medicine Sebastian Sattui Hospital for Special Surgery (NY) Arundathi Jayatilleke Temple University Jean Liew University of Washington Namrata Singh University of Washington Aarat Patel University of Virginia Katherine Wysham VA Puget Sound/University of Washington Alí Duarte Mayo Clinic Marc Nolan HealthPartners (MN) Jeffrey Sparks Brigham and Women’s Hospital/Harvard Medical School Leanna Wise Keck Hospital of USC About our current collaboration with the American College of Rheumatology (ACR): To facilitate our ability to quickly address the challenges facing rheumatology in the context of this pandemic, we are pursuing a collaboration with the American College of Rheumatology (ACR) to support our initial development as an organization. This arrangement will allow us to leverage the rich resources and support of the ACR so that we can ultimately form an independent organization. As we develop “in-house” expertise in such topics as regulatory compliance, finance, and grant management, the ACR can help us meet our obligations and responsibilities to the community that The COVID-19 Global Rheumatology Alliance serves. Both The COVID-19 Global Rheumatology Alliance and ACR agree that the ultimate goal is for The COVID-19 Global Rheumatology Alliance to be an independent organization pursuing its mission. Our Mission: Our mission is to create a secure, de-identified, international case reporting registry and curate and disseminate the outputs from that registry. It is our hope that the information collected will help guide rheumatology clinicians in assessing and treating patients with rheumatologic disease and in evaluating the risk of infection in patients on immunosuppression. Our data sharing agreement with other groups and organizations: We established The COVID–19 Global Rheumatology Alliance’s registries during the time of a global crisis, for the betterment of all people. Our goal is to provide an open platform for data collection, sharing, and dissemination which is transparent, inclusive, and non-competitive in the most democratic and responsible ways possible. In partnering with The COVID–19 Global Rheumatology Alliance, you agree to share collective data with the above purpose in mind. In return, you will receive access to the collected data that is to be used for the betterment of society. Any data-sharing agreements are subject to institutional review board approval.
This is the typical situation where someone has no evidence to support their assertions and they just cast aspersions on creditable, factual sources..... rather then presenting real information.
And this is nothing to with a dozen other factors even if true? Like not having a normal immune system to react to it in a damaging manner? As appears to be happening to many healthy adults with no prior conditions and covid'19 https://www.cidrap.umn.edu/news-perspective/2013/08/study-shows-cytokine-storm-fatal-2009-h1n1-cases How was Lupus with H1N1 and how long do lupus patients live? Coz you know, many can now live a long life nowadays but still many die younger so fewer elderly to snuff it.
There are numerous articles all over the internet citing Lupus patients dying from COVID-19 Go do a simple google search and educate yourself. -------------------------------------------------------------------------------------------------------------------------------- Brian Joseph is no stranger to death. But life as a funeral director and a person living with lupus during the COVID-19 pandemic has given him pause. Mortuary services are considered critical services exempt from the shelter-in-place declarations designed to slow the spread of the disease. And recently the calls to his five funeral home locations in southeast Michigan have increased. “We’re in a hotspot in Detroit,” says Joseph. “We have four immediate burials today and three of them were COVID patients.” As a result, the homes have taken measures to protect both families and staff and to offer care to the best of their ability in an era of social distancing. The fact that some of those victims had the same underlying condition he has is not lost on him. “I’ve seen lupus patients that are dying. On the death certificate it says cause of death: respiratory failure or COVID-19 and other significant factors: lupus or diabetes or SLE,” he says. “Does that not force me to step back and look? This is where my faith comes in. It tells me strongly to inhale and do everything that the scientists say.” https://healthblog.uofmhealth.org/wellness-prevention/pandemic-fight-over-plaquenil